Foundation Fighting Blindness is an organization focused on driving research for blinding retinal diseases, aiming to provide preventions, treatments, and cures for conditions such as retinitis pigmentosa and macular degeneration.

Foundation Fighting Blindness

Foundation Fighting Blindness | 14,812 followers on LinkedIn. We are driving research finding treatments and cures for blinding retinal diseases.  | The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, Usher syndrome, Stargardt disease, Leber congenital amaurosis, age-related macular degeneration, and the spectrum of retinal degenerative diseases.

Healthcare Innovation & Commercialization Expert

Neema Mayhugh, PhD

Nicholas Montagnese

Board Member | Executive Coach | Advisor | Former CMO

Jackie Yeaney

Scott Burt

We're headed to London! Join us this Saturday, November 16, at the Smith Centre for an inspiring Vision Seminar led by our CEO, Jason Menzo ! Dive into the groundbreaking work driving treatments and cures for blinding diseases like AMD, retinitis pigmentosa, Usher syndrome, and more. Hear from experts, Prof. Michel Michaelides and Dr. Nikolas Pontikos, as they discuss the latest research breakthroughs and the path forward in vision science. Don’t miss out on this inspiring event—come connect, learn, and be part of the Foundation Fighting Blindness community. We can’t wait to see you there! Learn more and RSVP at: https://bit.ly/3NH8Fpo Video Description: Laura stands in front of a window and speaks directly to the camera. Blue and teal border with text in the bottom left corner that reads "Laura Fietta. London, UK" and the Foundation Fighting Blindness logo in bottom right corner.

We are excited to share our latest podcast episode featuring Jason Menzo , CEO of the Foundation Fighting Blindness ! - From pharma to nonprofit: Jason's inspiring journey - Revolutionizing patient care with My Retina Tracker - Investing in eye care innovation and groundbreaking research - The future of eye health: Could eye transplants be on the horizon? Join us for an eye-opening conversation about the fight against blindness and the incredible work being done to bring hope to millions. Jason's passion and the Foundation's mission will leave you inspired and informed. Don't miss this episode! Listen now and learn how the Foundation Fighting Blindness is shaping the future of eye health. #EyeHealth #FightingBlindness #HealthcareInnovation #Podcast https://lnkd.in/eDwt5j3Y

BroadEYE: An Ophthalmology Podcast

Nippon Shinyaku, a pharmaceutical company based in Kyoto, Japan, and Atsena Therapeutics , a developer of gene therapies for retinal diseases in Durham, North Carolina, have entered into a license agreement for the commercialization of ATSN-101, an emerging gene therapy for Leber congenital amaurosis 1 (LCA1) which is caused by mutations in the gene GUCY2D. Read more at: https://bit.ly/3YO1mRT

Save the date and mark your calendars: #GivingTuesday is just around the corner on December 3rd! But why wait? Kickstart #GivingTuesday with a gift to the Foundation Fighting Blindness today. Your early gift will double the impact fueling groundbreaking research for blinding diseases! https://lnkd.in/dVuR-Bk Image Description: Dark blue background with green border. Foundation Fighting Blindness and #GivingTuesday logos centered at the top. Below is a large countdown displaying the number "21," followed by text that reads "days until Giving Tuesday!"

Join the Foundation Fighting Blindness on December 7 for our National Chapter Webinar to get an inside look at the groundbreaking progress happening in clinical trials for blinding diseases. Our panel of expert speakers will share the latest research, reveal new clinical trial opportunities, and explore how these advancements are shaping a brighter future for those affected by vision loss. 🧬👁️ Whether you're a patient, caregiver, or healthcare professional, this is your chance to stay informed and inspired. Don’t miss it—register today! https://bit.ly/3Z1Kk44 Image Description: Dark blue background with the Foundation Fighting Blindness logo at the top. Below it, the text reads "National Chapter Webinar" with more text below that reads "Clinical Trials." The event date and time are listed as "Saturday, December 7, 2024, 12:30 P.M. ET." Geometric lines and a colorful digital wave are featured at the bottom.

Get ready, London! 🌍✨ Join us on November 16 at the Smith Centre for an exclusive Vision Seminar hosted by our CEO, Jason Menzo . This is your chance to dive into the groundbreaking work driving treatments and cures for blinding diseases like AMD, retinitis pigmentosa, Usher syndrome, and more. Hear directly from experts Prof. Michel Michaelides and Dr. Nikolas Pontikos as they discuss the latest research breakthroughs and the path forward in vision science. Don’t miss out on this inspiring event—come connect, learn, and be part of the Foundation Fighting Blindness community. RSVP now to secure your spot: https://bit.ly/3NH8Fpo Image Description: Dark blue and teal gradient border with a white background. The Foundation Fighting Blindness Vision Seminar logo centered at the top with an orange line below it followed by text to the left that reads “Saturday, November 16, 2024, 10:00 a.m. to 1:00 p.m. BST." Followed by smaller text that reads "Smith Centre - Science Museum. Exhibition Road, South Kensington, London SW7 2DD, GB." Below, from left to right, are Nikolas Pontikos, Jason Menzo, and Michel Michaelides.

As October’s Blindness Awareness Month has come to a close, we extend our heartfelt thanks to everyone who shared their #ShareYourVision stories. Your voices have sparked hope, inspired others, and deepened understanding of the unique experiences of vision loss. Together, we’ve shown that the Foundation Fighting Blindness community is not just united—it's empowered by your courage. Let’s keep the momentum going. By continuing to share, support, and advocate, we drive our mission forward: finding treatments and cures for blinding diseases. Together, we can make a brighter future possible. Image Description: Dark blue box in the center with an orange border. The Foundation Fighting Blindness and Share Your Vision logos in the top center of the box with text below that reads, “Thank You!” Twelve headshots of visually impaired individuals surround the dark blue box.

At the Foundation Fighting Blindness, we are more than just a community—we are a family. Together, we support each other, share our stories, and work towards a brighter future. Join our family, share your story, and help us drive the future of vision research. #ShareYourVision and become a part of our mission at: https://lnkd.in/e29Pk26z Video Description: The Foundation Fighting Blindness and Share Your Vision logos in the top right corner with text below that reads, “ #ShareYourVision .” A blue banner with text that reads each individuals name and disease appears in the bottom left corner. [0:00 to 0:10] Brad Manning, Stargardt disease. [0:10 to 0:16] Fai Mo, retinitis pigmentosa. [0:16 to 0:23] Cassie Lotas, Macular Dystrophy. [0:23 to 0:35] Tim Smith, retinitis pigmentosa.

#ShareYourVision with Meredith Tyree, a devoted Foundation community member and National Trustee with Usher syndrome. For Meredith, a treatment for Usher syndrome would mean freedom. Share what a treatment would mean for you with #ShareYourVision . https://lnkd.in/e29Pk26z Video Description: Meredith sits in front of a blue backdrop and speaks directly to the camera. The Foundation Fighting Blindness and Share Your Vision logos in the top right corner with text below that reads, “ #ShareYourVision .” A blue banner with text that reads “Usher Syndrome. Meredith Tyree.” appears in the bottom left corner from 0:02 to 0:07.

#ShareYourVision with Krystle Allen, founder of Eyes Like Mine with Pseudotumor cerebri (PTC). Receiving a vision loss diagnosis can feel isolating, but you are not alone. By sharing your journey with #ShareYourVision , you can inspire understanding and connection. https://lnkd.in/e29Pk26z Video Description: Krystle sits in front of a blue backdrop and speaks directly to the camera. The Foundation Fighting Blindness and Share Your Vision logos in the top right corner with text below that reads, “ #ShareYourVision .” A blue banner with text that reads “Pseudotumor Cerebri Bilateral Optic Atrophy. Krystle Allen.” appears in the bottom left corner from 0:02 to 0:07.

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Foundation Fighting Blindness