Stargardt's Connected is a community organization focused on supporting individuals affected by Stargardt's disease, a rare inherited progressive disease affecting the retina. The organization provides resources, support, and promotes education about the condition, encouraging community connection and awareness. Self-described as working towards raising awareness, providing support, and seeking a cure.

Stargardt's Connected

Stargardt&#39;s Connected | 178 followers on LinkedIn. Raising awareness, Giving support, Seeking a cure | Stargardt’s Connected (Registered Charity Number: 1183570) exists to raise awareness, give support and do what we can to progress towards a cure for Stargardt’s disease, a rare form of inherited central vision loss.

We are here to provide information to families affected by Stargardt’s, signpost them to available support, inform about the latest research, and promote a Stargardt’s community that we hope will assist in driving essential research forward. 

Although there is no current treatment for Stargardt’s, the continuous groundbreaking research undertaken in the form of drug, gene and stem cell therapies means that treatments for Stargardt’s are looking increasingly optimistic.

I support capacity, capability and culture building for engagement, societal impact and participatory research | Chair of Trustees for a rare disease…

Andrew Skilton

Public Health | The University of Manchester

Sindhu Khanna

It is the Royal Horticultural Society #rhschelseaflowershow this week. Our special thanks go to the extraordinary #team of Camilla Windsor-Clive, Joanne Edmonds and Sebastian Brand, who designed and built the Silver-Gilt Award-winning 'The Hampden Stargardt Garden' sensory container garden to raise awareness of #Stargardt and Stargardt's Connected . Our #ceo Bhavna Tailor is there supporting the team. As well, a big #thankyou to Michael Owen and family for coming by the garden and showing their support. https://lnkd.in/eWER6U8G .

October is Blindness Awareness Month! As someone who is visually impaired, I’m on a mission to raise awareness and build connections within our community. This month is a great reminder of the importance of understanding and supporting those of us with visual impairments. In February, I launched Brightside, a support group designed for individuals experiencing vision loss to share their experiences, resources, and encouragement. My aim is to foster a safe space where everyone can connect, learn, and grow together. Let’s collaborate to raise awareness, break down barriers, and uplift one another. I invite you to join our community, share your experiences, and help highlight the realities of living with visual impairment. Design done by our resident graphic designer, Olivia Hart ! #BlindnessAwarenessMonth #VisualImpairment #Community #Support #Brightside

Eavan O'Neill

Stargardt's Connected is an organization that provides support and raises awareness about Stargardt’s disease, a rare inherited retinal disease. It connects individuals affected by the condition, clinicians, researchers, and the pharmaceutical industry while seeking a cure.

ORG

UK:ORG:STARGARDTSCONNECTED

Stargardt's Connected

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